Comments on Card Blue: What's up with me

Any updates? I miss your words and am thinking of...

2009-06-03T14:27:16.165-04:00

Any updates? I miss your words and am thinking of you often.

Love K & E

been thinking about you and L everyday...kim and j...

2009-06-03T13:51:47.431-04:00

been thinking about you and L everyday...kim and josh

Been checking the blog and thinking of you. Peace,...

2009-06-01T17:05:18.809-04:00

Been checking the blog and thinking of you. Peace, love, care and support. Caroline

In answer to your Q on ES, when the thoraxic surge...

2009-05-24T01:00:04.429-04:00

In answer to your Q on ES, when the thoraxic surgeon performed a pleurodesis via camera assist he saw what he described as numerous small pebble like tumors on the lining of the lung. He described it as 'not impressive' as opposed to seeing a large massive tumor wreaking all kinds of havoc. But I wonder if this is what is different with ES and why it causes so many pneumothoracies, by attacking the lining with small cancer cell activity versus forming nodules that grow into problems. It was always their opinions that the tumors caused some communication breakdown between the lungs and the chest wall to allow air in. I've had at least three instances of pneumothoracies so something goes on with ES and the lining of my lungs. There's not a significant tumor inside the lungs that would account for the problems. But there's always been PET scan activity/readings in the lungs. So cancer is present and active. To our luck, it's too small to be removed and in a position that destroys both lung and the space inside. Let me know if you hear from others,

Josh

Yes, Brivanib can cause shortness of breath. Enjoy...

2009-05-22T15:15:09.587-04:00

Yes, Brivanib can cause shortness of breath. Enjoy your Memorial Day weekend, SG and keep fighting this with whatever you have. As there are not a lot of proven therapies for Sarcoma, my advice is to look at some anecdotal evidence as well and put those into your tumor fighting toolbox.

I'm jealous. I majored in English. My mother was an English teacher. My brother is an English teacher. My sister and Aunt both majored in English and my kids don't read. Good for your daughter for enjoying a good story. I am currently reading "Songs in Ordinary Time" and as I'm almost done, I'm on the fence as to what to read next. If you have suggestions, pass them along but keep in mind, I'm a chick.