Otherwise, things are still mostly OK. I finish my third cycle of Temodar on Monday; we'll then take a week off, do a scan, and hopefully launch a fourth cycle of the drug. If a scan after the fourth cycle looks good, I'll decide whether to continue the Temodar or, more likely, try the deforolimus trial. If the scan is bad, we'll choose some other form of chemotherapy -- if that comes to pass, I'll probably want to shop around for a clinical trial, though I don't have anything specific clearly in mind.
The Temodar is clearly fatiguing me, but in subtle ways. Unlike all the other chemotherapy I have had, it's hard to point to specific things and blame them on the drug. This is a good thing, obviously, but it leads me to sometimes not give myself the slack that being on chemo requires. I get frustrated at myself for not accomplishing more, when really I need rest to accomplish the most important goal -- getting through the treatment and getting better.