Wednesday, June 25, 2008

In California

I'm going to be in California for the next couple of weeks, logging beach time, eating Mexican food, and trying to focus on the kids. Posting will be light, but I'm sure I'll pop up at intervals.
Things have been quiet in life, as on the blog -- after an annoying battle for pre-authorization for cycle 2 of Temodar (why does RESTAT put up roadblocks when clearly, obviously they're going to have to pay?), I'm back on chemo.

The tentative plan at this point is to alter the dosing scheme for the drug so that instead of eight-week cycles (six weeks on, two weeks off), I'll do four-week cycles (three on, one off). The idea is to start racking up those cycles faster because Ariad's SUCCEED trial requires four cycles of stable disease or response before they enroll you. I'm not completely sure I want to be in this study at this point -- it's placebo-controlled, and I'd really hate to get a placebo -- but I want to have as many options as possible. So we've magicked the same dose into two cycles instead of one. I've got to read up on this to make sure I'm not giving anything up, but it makes sense.
Shout out to Youngstown, Ohio -- ongoing no evidence of disease on a pelvic epithelioid sarcoma! Whoo-hoo!
Next post topic: fish tacos.
Potential future post topic: The mounting crapiness of JetBlue. I hate to dis them -- the title of this blog is in part a reference to them, and if I ever do a logo the suggestion will be even clearer -- but the sad fact is that they have outgrown many of their key airports and their customer experience is horrible. I may have to eat 50 fish tacos to recover from the trip out.


Sachin Palewar said...

Good. Enjoy your time on beach with family. Good luck.

Anonymous said...

You are such a brilliant writer—it pisses me off that no one is paying you to write this. I know you don’t take compliments too well, so I’m trying to think of a good insult, but one isn’t coming to mind to restore world order. Put that on the TK list.